Surgery round 2…

Yesterday Josh and I took Colbey Raye up to Seattle to see doctor Ojemann and discuss what the next steps for surgery are. Last week we were given a few different dates for surgery, we made out choice but wanted to discuss the urgency with Doctor Ojemann before setting it all in stone.
Some details about this upcoming surgery; it is a full hemispherectomy this time around, Dr. Ojemann will be cutting the same opening so it will still be the one scar, and he will be removing a big portion of the frontal lobe and some surrounding areas so he can get to the deeper part of Colbey Raye’s brain to disconnect the rest. The back portion will be mostly disconnected instead of fully removed in hopes to reduce the need for a shunt. Even though there will be areas of Colbey Raye’s left brain still intact they will not be functioning. This surgery has a 60% success rate in achieving complete seizure freedom, these odds do sound much better than the 30-35% chance we had with the previous surgery. Our number one goal is to control the seizures as best as possible and with this surgery we all feel it is the best way to achieve that goal. Colbey Raye will most likely be on medication for the remainder of her life, but our hope is that it will be a smaller quantity. Because the entire left side of Colbey Raye’s brain will be gone or disconnected there are more permanent side affects that will impact Colbey’s abilities. She will lose the peripheral vision in the right side of both eyes, leaving her blindsided on the right side. Her fine motor skills will be greatly affected in her right hand, and possible her right foot. She will be able to use her arm to help move things in her direction and possibly be able to gain enough strength and coordination to use both hands together to pick something up, but she will most likely not be able to pick up objects with just her right hand. Her right leg will regain more strength and control than her arm, and she will most likely be able to walk and use her leg/foot just fine in time. Things such as talking, walking, and learning certain things will come later for Colbey Raye, but doctor Ojemann is very optimistic that in time Colbey Raye’s cognitive abilities, and speaking abilities will catch themselves up. By stopping the seizures Colbey Raye’s healthy brain will be able to start resting so it can begin to learn the things that have been difficult for her to learn thus far. She has improved so much in this short 3 months since her last surgery we are very hopeful she will have a similar recover after this second surgery.
Surgery is scheduled for May 22nd. Because this is a more in depth procedure the recovery time is a bit longer. She will most likely be in the hospital 10 days after surgery and will require some extra feeding help for a few days. In the mean time we will be preparing for the big day, enjoying time with each other and loving on sweet miss Colbey Raye as much as possible. The next few weeks will fly by and I just want to soak up every smile, every giggle and ever snuggle Miss Colbey Raye has to give. Time is precious and to often we let it slip away. Knowing that God is in control gives me peace of mind, and even though I might think “are you sure I can do this” (been a question in my head over a few different topics lately 😋), I know His plan is greater than mine! He pushes us so we can succeed, and successful we shall be. Thank you to everyone for your prayers, thoughts and support. We appreciate it so much and it has helped us in these hard time so much!


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